Anschutz Medical Campus recognized for treatment of rare diseases
By Cailey Gleeson
Becker's Hospital Review
The National Organization for Rare Disorders on Nov. 4 announced 31 healthcare providers across 21 states earned the designation of NORD Rare Disease Centers of Excellence.
The goals of the program are to promote outstanding treatment for rare disease patients, elevate collaboration, improve standards of care, advance research and increase awareness about rare diseases in the broader medical and patient communities.
Each provider was selected in a competitive application process requiring evidence of staffing with experts across multiple specialties to meet the needs of patients and significant contributions to rare disease patient education, physician training and research.
Below are the 31 health providers honored, listed in alphabetical order and not ranked.
- Baylor College of Medicine/Baylor St. Luke’s Medical Center/Texas Children’s Hospital in Houston
- Children’s Hospital of Orange County/UC Irvine in California
- Children’s Wisconsin/Medical College of Wisconsin in Wauwatosa, Wis.
- Cincinnati Children’s Hospital Medical Center
- Columbia University Irving Medical Center in New York City
- Duke Health Rare Disease Center in Durham, N.C.
- Emory University (Atlanta) and Children’s Healthcare in Druid Hills, Ga.
- Icahn School of Medicine at Mount Sinai (New York City) Department of Genetics and Genomic Sciences
- Indiana University Health-Indiana University School of Medicine in Indianapolis
- Johns Hopkins Medicine/Kennedy Krieger Institute in Baltimore
- Mass General Hospital/Mass General Hospital for Children/Brigham and Women's Hospital in Boston
- Mayo Clinic in Rochester, Minn.
- M Health Fairview Masonic Children’s Hospital in Minneapolis
- McGovern Medical School in Houston
- Nationwide Children’s Hospital/Ohio State University in Columbus, Ohio
- OU Health/University of Oklahoma Health Sciences Center in Oklahoma City
- Penn Medicine/Children’s Hospital of Philadelphia
- Rare Disease Institute at Children’s National Hospital in Washington, D.C.
- University of Alabama at Birmingham Medicine/Children’s of Alabama
- University of California, San Francisco & UCSF Benioff Children’s Hospitals
- University of Colorado Anschutz Medical Campus/Children’s Hospital Colorado/UCHealth in Aurora
- University of Iowa Health Care in Iowa City
- University of Miami Miller School of Medicine
- UNC Children’s – North Carolina Children’s Hospital in Chapel Hill
- UNMC Munroe-Meyer Institute, Omaha Children’s Hospital and Nebraska Medicine
- UPMC Center for Rare Disease Therapy in Pittsburgh
- UT Southwestern Medical Center in Dallas
- University of Utah Medical Genetics in Salt Lake City
- University of Wisconsin Center for Rare Diseases in Madison, Wis.
- Vanderbilt University Medical Center in Nashville, Tenn.
- Washington University/BJC HealthCare in St. Louis